It has been a long time since I wrote about my condition here. As anyone who knows me in the 'real world' and online knows, I don't like to let this strange sounding illness define me, however I have always felt strongly that in s[...]
It has been a long time since I wrote about my condition here. As anyone who knows me in the 'real world' and online knows, I don't like to let this strange sounding illness define me, however I have always felt strongly that in s[...]
It has been a while since I wrote about my invisible illness, Ankylosing Spondylitis, and whilst I don't like to let this illness define me, I feel it is so important to write about it, not only for myself, but in supporting other[...]
Dear Ankyosing Spondylitis, Over the last few days, I have been angry, I have been inwardly upset, most of all, I have felt betrayed. I still don't fully understand what is going on; I don't understand the science or the biol[...]
I have seen countless posts online and on social media about all the things people shouldn't say to someone with chronic illness, whilst I understand the points made in these posts, this post is going to be a little different.[...]
It has been a few months since I was diagnosed with this disease. I haven't broken down or felt sorry for myself. I have pressed on with my life, no changes… just plodding on as best as I possibly can. The 'flares' come and[...]
I have had the most overwhelming response to my post 'My Journey to diagnosis - Ankylosing Spondylitis'; I have been amazed that most, have been on a long journey to diagnosis, just as I have, with most having an 8 and a half yea[...]
Anyone who knows me, or follows me on Instagram will know that I was recently diagnosed with Ankylosing Spondylitis. It took me days to pronounce it, weeks later, I am still only just getting to grips with what it means. My jou[...]